About the Alliance

About the Alliance for Proton Therapy Access

The Alliance for Proton Therapy Access is working to make sure all cancer patients seeking proton therapy receive fair and timely payment decisions from their health insurers.

Cancer patients and their doctors want the best possible treatment that offers the highest quality of life. That’s why physicians recommend proton therapy for many cancer diagnoses. But too many people are suffering undue health risks, anxiety, and financial hardship when insurers subject them to lengthy, confusing appeals processes that delay and in some cases, deny treatment.

Patients, families, caregivers, and physicians are speaking out. When it comes to cancer, we don’t have time to waste on unnecessary bureaucracy – patients need quick answers to life-threatening problems.

Our mission is to attain a fast, fair and transparent insurance review process for cancer patients in need of proton therapy.

The Alliance has formed a Scientific Advisory Committee, comprised of radiation oncologists representing a variety of specialties and proton centers from across the country, to advise the Alliance on research developments to support our advocacy programs.

SEE THE SCIENTIFIC ADVISORY COMMITTEE MEMBERS

Our Leadership

Daniel E. Smith
Executive Director 

Dan Smith has nearly 30 years’ experience in government, politics, and advocacy, and special expertise  in strategic planning, building organizational capacity, assembling coalitions, facilitating meetings, and leadership development.

Previously, Dan was staff director for the Senate Health, Education, Labor, and Pensions Committee. Prior to that he launched and led the American Cancer Society Cancer Action Network (ACS CAN), the American Cancer Society’s nonprofit, nonpartisan advocacy arm. Dan also founded One Voice Against Cancer (OVAC).  Before joining ACS CAN, he served as a state director, chief of staff, and agriculture committee staff director for U.S. Senator Tom Harkin. A native of Iowa, Dan has also served in leadership roles for several presidential campaigns. Dan is also the founder and president of AdvocacySmiths, a strategic consulting firm.

 

Molly Daniels
Advocacy Director

Molly Daniels is a deft strategist, consensus builder, and inspirational leader, she has nearly 30 years of experience training, organizing, and mobilizing grassroots.

Previously, Molly was Chief Advocacy Officer of the American Cancer Society Cancer Action Network (ACS CAN), the nonprofit, nonpartisan advocacy affiliate of the American Cancer Society. In her 15 years at ACS CAN, Molly launched a nationwide movement of nearly one million advocates. Prior to the Society and ACS CAN, Molly spent twelve years at AARP as the head of their national grassroots program. Earlier she ran the volunteer advocacy program for the Older Women’s League, as well as legislative campaigns for the Long Term Care Campaign. Molly is also a principal at AdvocacySmiths, a strategic consulting firm.

 

Moataz Karmalawy, Chair
Vice President and General Manager, Worldwide Particle Therapy
Varian Medical Systems, Inc.

 

Steven J. Frank, MD
Professor
Deputy Head, Radiation Oncology
Medical Director, Proton Therapy Center
The University of Texas MD Anderson Cancer Center

 

Hiroyuki (Henry) Itami
Executive General Manager, Particle Therapy Division
Hitachi, Ltd.

 

Joe K. Jachinowski
President and Chief Executive Officer
Mevion Medical Systems

 

Olivier Legrain
Chief Executive Officer and Managing Director
IBA Worldwide

 

Cathleen McBurney
Patient Advocate

 

Megan Niese, PA-C
Patient Advocate

For more information about the Alliance or to find out how you can get involved, please e-mail Molly Daniels, Advocacy Director at info@allianceforprotontherapy.org.

For media inquiries, please e-mail us at media@allianceforprotontherapy.org.

"Proton beam radiation will target my tumor and not surrounding tissue, and to me is the clear choice. Unfortunately, my insurance company doesn’t agree with me or my team of medical experts and has denied coverage."

Patients and family members are the most powerful advocates for fair and timely proton therapy access. You know best what needless delays and denials of treatment can mean for patients who are fighting to survive cancer.

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